Worse than cancer

As I reflect on life and death this Easter, my prayer continues to be that God will take away my cancer – that I will be fully healed. But I want you to know that I thank God that he has already taken away something far worse than my cancer. He has healed me from my sin, from my selfish hostility to him. And while the price of chemotherapy is very high, the price of my spiritual cure is unbelievable – that Jesus should give his life for me, dying in my place, on that first Good Friday.

My prayer for you is that this will be the best Easter you have ever known.

(extract from macarisms.com on 4/4/12)

Posted in Journey with cancer | Leave a comment

Beyond the darkness

I spent Tuesday in hospital getting my final ‘full-dose’ chemo treatment. Apparently, limiting this treatment to 4 cycles is the optimum and, if the cancer is not advancing, then they intend to keep me on a 3 weekly ‘maintenance’ chemo plan. This is supposed to reduce the impact of side effects, while preventing the cancer from growing or spreading further. The medical expectation is that the cancer will grow again at some point, and then I will be offered other options. We are hoping to be able to access a specially targeted drug, called Crizotinib, which is showing very good results in people with my specific cancer mutation. This should be available if there is evidence that the tumour is growing again – a bit of a Catch 22 really! But all this lies ahead of us.

This morning I received an email from a good friend overseas. In fact, he sent it three times, so I am guessing he really wanted me to take notice! This is part of what he wrote…

The comment you sent to me via Facebook about dark times and tears made me realize the deep personal struggle you are going through. Just wanted to encourage you to dip into that more as you write, because it counts for a lot. My feeling is that most people live in that realm, whether they have cancer or not. While the analogy doesn’t directly apply, I think it conveys the point: life is more Daily Telegraph than Sydney Morning Herald… or worse still!

I’ve been reflecting on this a bit. My desire is not to continually focus on myself as I write this blog. But I am seeking to be a blessing to others and that means being honest about the ups and downs. Not that everything needs to get said, and not that everything should be revealed in a public forum, but I will share a bit about the dark times.

On my first day in hospital, hearing that I likely had cancer a was huge thing. No one wants to hear the words tumour or cancer, and certainly not about themselves or someone they love. Tears welled up instantly, feelings of massive loss, fears for my kids, and my wife… they all flooded in. Seeing the tears in the eyes of my family and the friends who came to visit added to the pain. We were dealing with a bombshell and it was so hard.

My time in hospital was supposed to be pretty straightforward. Drain the fluid, be out in a few days. I even remember telling our church staff that I should be right to speak the following weekend! But it didn’t go to my plan. I got sicker and weaker. Instead of my health improving, I just seemed to go backwards. At times I couldn’t even walk to the bathroom, or adjust my posture in bed. It was an effort to breath, painful to yawn and cough (let alone sneeze), and hard to talk with people when hooked up to oxygen. My digestive organs decided to shut up shop and 10 days of constipation resulted in violent vomiting. Immediately after one vomiting episode I was taken for a chest x-ray (why it had to be right then I do not know!) where I collapsed, resulting in an emergency team rushing to my aid. I started to think I wasn’t going to make it out of hospital.

My ignorance of medical things also added to my fears. On one occasion I saw my chest x-rays while they were being processed. I only had one functioning lung – the other had collapsed! I honestly thought, this meant I didn’t have much hope. For some reason, I assumed that I needed two good lungs to be able to breathe. Fiona set me straight on this and also pushed me to work hard on breathing exercises to get the lung re-inflated!

On one occasion they changed my drugs and this led to hallucinations. I don’t think I’d experienced this before. Dreams that you can’t turn off, even with your eyes wide open. It was a long, lonely, scary night being faced with weird and frightening experiences coming one after another.

Perhaps, the hardest experience in hospital was my first contact with the oncologist and his team. Up until their visit, things had focused pretty much exclusively on the surgery and the chest drains, and I hadn’t had to think too much about the cancer. This changed dramatically, as I was quickly told that that my cancer was incurable. I didn’t understand why they weren’t offering me hope of a cure (or for that matter why I needed to be told this on a first consult and without Fiona present), but this news was devastating!

Being faced with my mortality has led to some very sad times. In my weakness, sometimes I have become sullen, grumpy, melancholic, perhaps even depressed. I’ve often grieved what I may never be able to do, the loss of time with family and friends, not being able to do a lot of the fun things people do with their kids, or thinking of life events I may never be a part of. There have been times when I’ve felt a burden and useless, and thoughts have turned to thinking people would be better off without me. I’ve been reduced to tears – uncontrollable sobbing, overwhelmed, sometimes crying out in agony, God please help me! Fiona has been fantastic at urging and helping me not to slide into self-obsession or depression. And I’ve asked a couple of friends to keep an eye on me too.

I don’t want to go on and on in this vein but I must say that there’ve been some times when the struggle has been deeply spiritual. God has seemed very remote. His plans and purposes for me have been very unclear. I’ve had days where I’ve seriously questioned his existence, or the truthfulness of the gospel message. Does God love me, care for me? Can I trust him with my life, my death, my future, my family? Isn’t it a bit weird to base my confidence on the Bible, written so many hundreds of years ago? Did Jesus live? Was he crucified? Did he actually rise again from the dead? Is he alive today? Such ideas can seem pretty weak and foolish, and not exactly a confident platform to stake my life on.

I’ve found myself going back to the Bible and reading things over again. I’ve looked at interviews with leading historians and Biblical scholars. I’ve weighed up some of the critiques and arguments of sceptics and naysayers. And I’ve searched my heart. And in doing this, I’ve been encouraged to keep trusting in God and his promises.

Over the years a few Bible verses have spoken to me in the midst my struggles and doubts. Let me share a couple. The first is the response of a father, hoping that Jesus can help his son, where he says in Mark 9:24, “I believe; help my unbelief!” I’ve often identified with this man. Those who’ve told me it’s the strength, or otherwise, of my faith that will determine whether God will act (or even can act) need to reread this verse and see Jesus’ compassion in response to the man’s wavering. It’s not my faith that compels God to act. Rather it is God’s faithfulness to his character and promises that leads me to keep trusting in him.

Another part of the Bible I’ve found helpful comes from an incident after the resurrection. Jesus had recently appeared to many of his followers, but Thomas wasn’t with them, and he was unpersuaded that Jesus had really been raised from the dead. We read of this in John 20:24-28.

Now Thomas, one of the Twelve, called the Twin, was not with them when Jesus came. So the other disciples told him, “We have seen the Lord.” But he said to them, “Unless I see in his hands the mark of the nails, and place my finger into the mark of the nails, and place my hand into his side, I will never believe.”

Eight days later, his disciples were inside again, and Thomas was with them. Although the doors were locked, Jesus came and stood among them and said,“Peace be with you.” Then he said to Thomas, “Put your finger here, and see my hands; and put out your hand, and place it in my side. Do not disbelieve, but believe.” Thomas answered him, “My Lord and my God!”

Hence, Thomas becomes the disciple famous for doubting. Maybe you can relate to this too. But it’s the next comment from Jesus that has always given me encouragement and hope. Jesus understood it was hard for Thomas to be persuaded, but he also acknowledged that it would be hard for all who came after him. We sometimes say seeing is believing, but when we’re dealing with history before cameras and video, it becomes more a case of reading or hearing is believing. This doesn’t make it less true, it just means that our evidence is in a different form to that offered to Thomas. We get it as a record from the first eye, ear and hand witnesses, that has been recorded and passed on to us. Just because I wasn’t there doesn’t mean it didn’t happen.

Jesus said to him,“Have you believed because you have seen me? Blessed are those who have not seen and yet have believed.”
(John 20:29)

I’ve also gone back over some of the Psalms from the Old Testament. Many of these are are open and honest accounts of people who are struggling to trust God in their difficult circumstances. Sometimes they question and challenge God. Sometimes they plead with God to do something about their circumstances. Sometimes they call for justice or mercy from God. What has struck me personally is that the writers are not afraid to let God know their thoughts and feelings, even when they are unhappy with God. They grapple with their struggles, but then they remind us of the way forward. Hope is not ultimately found in improving their condition or circumstances, but by resting in the trustworthy promises of God.

Soon after I became aware of my cancer a friend encouraged me to read over Psalm 62 again. I take heart from what this part of the Bible teaches us about God. It honestly shows the writer overwhelmed by how God appears to be standing back and allowing him to suffer, and yet it takes us back to the character of a God who can be trusted because he is both strong and loving. Have a read…

My soul finds rest in God alone;
my salvation comes from him.
He alone is my rock and my salvation;
he is my fortress, I will never be shaken.

How long will you assault a man?
Would all of you throw him down—
this leaning wall, this tottering fence?
They fully intend to topple him
from his lofty place;
they take delight in lies.
With their mouths they bless,
but in their hearts they curse.

Find rest, O my soul, in God alone;
my hope comes from him.
He alone is my rock and my salvation;
he is my fortress, I will not be shaken.
My salvation and my honor depend on God;
he is my mighty rock, my refuge.
Trust in him at all times, O people;
pour out your hearts to him,
for God is our refuge.

Lowborn men are but a breath,
the highborn are but a lie;
if weighed on a balance, they are nothing;
together they are only a breath.
Do not trust in extortion
or take pride in stolen goods;
though your riches increase,
do not set your heart on them.

One thing God has spoken,
two things have I heard:
that you, O God, are strong, 
and that you, O Lord, are loving.
Surely you will reward each person
according to what he has done.

If God were strong but not loving, then he would be nothing less than a danger to everyone. If he were loving but not strong, then he could offer us sentiment but no help. The Bible affirms he is both strong and loving, infinitely so, and it is here that we find our true hope. I need look nowhere else. My experience of God is that he is both strong and loving. And I see this most clearly and persuasively in the death and resurrection of Jesus, where he paid the cost for my rebellion and offered me life for eternity.

(first published in macarisms.com on 29/3/12)

Posted in Journey with cancer | Leave a comment

Marriage in the tough times

img_0869Some time back, Fiona and I attended a marriage enrichment workshop with other couples from our church. We were all encouraged to graph the high points and low points of our marriages. To be honest, I can’t remember exactly the point of the exercise. Perhaps it was to remind some of us that there have been highs as well as lows!

Well, I was thinking about this again recently, and there are three experiences in our relationship that stand out above all the others. They’ve drawn us closer together as a couple, we’ve come to appreciate each other more deeply, and they have enriched our relationship beyond all expectation. And they’ve each been hard – harder than we would have imagined we could bear.

The first took place 15 years ago. We’d just planted a new church, moved into a new house, and Fiona was expecting our third child. We decided to grab a holiday to catch our breath a few months before our baby was due. We were camping in a tent up the coast, and the next thing we knew our daughter was born – at 26 weeks, weighing 900 grams, and not much bigger than a can of coke. She spent the next three months in neo-natal intensive care and we made two or more trips to the hospital everyday. On many occasions we weren’t sure if she was going to make it. The social workers told us that events like this can damage marriages, pull couples apart and often result in divorce. It was hard – SO hard. But for us, it drew us together and deepened our love for each other.

The second experience is more recent. We were travelling on our long service leave, having just experienced the breathtaking wonder of the Kimberley and the Pilbara regions. Travelling across a remote cattle-station, we suddenly found ourselves – 4wd and camper – sideways, out of control, and rolling like a dice. The scene was awful. Our 12 year old had been thrown from the vehicle, my wife was badly hurt, and we were so far from anywhere or anyone. After ambulances, flying doctor, cross-continent travel, two surgeries and a shoulder replacement for Fiona, our family returned home with everyone alive and mending. It’s still hard to relive the experience of the accident. And the rehab and struggles continue for Fiona. But there is no doubt these experiences enriched our marriage, and our family. Petty conflicts, annoying habits and foibles, concerns for ‘possessions over people’ – were shown to be so stupid, so insignificant. We treasured each other, and thanked God that we still had each other. And realised that we needed to keep looking after each other.

The last situation is happening now. It’s been documented already in this blog. We were only days from leaving Canberra to start over in the Northern Territory. We’d been planning, building a team, getting excited and exciting others, and getting ready to begin a new church with a fresh vision in Palmerston. And then, out of the blue, no warning, no preparation – we discover that I have cancer, and all our plans go out the window. Hospital, sickness, surgery, weakness, fear, grief, sadness, tears, panic, and more. Let me say, in all truth, that I have never loved my wife as well as I should. But the last three months have helped me to see what a precious jewel she really is. She has been my deepest friend, carer, lover, pray-er, advocate, nurse, doctor, organiser, empathiser, researcher, communicator, caring mother to our children… and so so much more. And I know she too has been hurting so deeply at times. The journey has a long way to go, but I thank God that we journey together.

Why do I share these three high points? Not so that we can plan for things to go wrong and then reap some magical benefits from our suffering. We can’t and don’t plan these things. But we have both learned, and it’s been confirmed through our experiences, that God works through our weaknesses and struggles. He gives us grace when we so desperately need it. He enables us to experience real joy in the midst of suffering. Not a superficial happiness, but a deeply contented joy that is not dependent on our circumstances.

Fiona and I have never been very good at reading the Bible together as a couple. But over the last three months we have done this quite a bit. I’d like to quote a few verses that have taken on a greater significance for us recently. Firstly, from 2 Corinthians 1:8-11:

We do not want you to be uninformed, brothers, about the hardships we suffered in the province of Asia. We were under great pressure, far beyond our ability to endure, so that we despaired even of life. Indeed, in our hearts we felt the sentence of death. But this happened that we might not rely on ourselves but on God, who raises the dead. He has delivered us from such a deadly peril, and he will deliver us. On him we have set our hope that he will continue to deliver us, as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many.

And from 2 Corinthians 12:9-10:

…but he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

The key thing in each of our experiences is that God has been at work. In the darkest of hours, God has always been there. He has picked us up, and carried us, and cared for us. He has reminded us of the foolish arrogance of thinking that we can do better on our own. He has taught us humility and patience, and these are among the hardest lessons to learn. (And we’re still in preschool in these matters!) God has given us a unity in our relationship – not by focusing on ourselves and our own needs, nor by simply focusing on each other, but profoundly by getting us both to focus on him.

(first published in macarisms.com on 13/2/12)

Posted in Journey with cancer | Leave a comment

God willing

Today is day 14 of my 3rd chemo cycle. The cycle starts with a day in hospital attached to a drip with nasty chemicals being pumped into the body. Then a roller coaster for the next 3 weeks, before you do it all over again. In theory, and based on previous cycles, I should be feeling pretty good and getting back into a semblance of normal life. But here is the problem – patterns, statistics, predictions, and even past experience, do not determine the future.

I ‘should’ be out and about, busy with work, and getting back into some gentle exercise. Instead, I’m lying in bed (with a laptop) trying to get rid of a chest infection and praying it doesn’t develop into anything worse. In fact, the past couple of days have made me rather fearful – fearful that I would end up in hospital again with pneumonia, fearful that I might compromise the chemo, fearful that something worse might happen.

(first published in macarisms.com 20/2/12)

Fiona reminded me last night that these things can often be two steps forward and one step back. Sometimes even the other way round for a while. I would do well to keep putting into practice the word of God that I believe:

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
(Philippians 4:6-7)

We are being reminded again and again that only God knows what’s around the bend and he calls us to trust him. There is a Latin phrase, deo volente, or DV, which means ‘God willing’. In days gone by it was common for Christian people to use these words as they spoke of their plans. You don’t hear it much these days, but I’ve begun using it more and more as I appreciate that it is God who is working out his good plans and purposes. In fact, this whole experience of getting cancer has highlighted how much I am not in control of my life and circumstances.

Back in December everything pointed to us moving to Darwin to begin the second major chapter of our lives. We had people on board with us, support structures and finances in place, a house to move into, kids enrolled in schools, tenants for our house in Canberra, a successor in my role at church, belongings in transit, and excited about the future. And then… a visit to the hospital changed everything. These verses from the Bible came to mind very powerfully:

Now listen, you who say, “Today or tomorrow we will go to this or that city, spend a year there, carry on business and make money.” Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes. Instead, you ought to say, “If it is the Lord’s will, we will live and do this or that.”
(James 4:13-15)

My life has been given to me by God. He calls me to make plans and to consider the circumstances and to do things wisely. But he also calls me to act with humility, to know that I belong to him, and that I can rely on him to do what is in my very best interests. Even when I would prefer things not to be happening! We’ve been learning this more and more.

But does this mean that all our preparations last year were going against God’s will, that somehow we were being disobedient and straying off the path? No, I don’t believe so. Our desire was to contribute to growing followers of Jesus in the Northern Territory. This desire was placed in our hearts by God and as we read the Bible we were reminded that this is pleasing to God. We sought wise council from many, and took years to come to our decision as a family. There was and is a big need, and we were drawn to respond. That need continues to exist and we pray that our passions to move north will be filled by others, or yet that I will be healed and one day serve God in that place, DV.

So is it possible to see the hand of God in what has happened? Absolutely. God has been at work in our hearts and minds, moving us to depend upon him more deeply than ever before. He has encouraged us, and literally thousands of others to pray. He has raised questions in the minds of friends that have nudged them to consider what we believe about God. He has deepened our empathy and love for people suffering under similar and worse circumstances. He has used our words to encourage others far and wide in their own struggles. He has caused us to appreciate our family and friends and church all the more. He has reminded us to number our days.

We can see God’s kindness in many of the details. My cancer was discovered because a doctor friend had the awareness to rush me to hospital when I complained of numbness and breathlessness. It was a time when all our family were at home. I had finished my final series of preaching at church. The church had already gone through a careful process of choosing my successor. It didn’t happen while we were on the road to Darwin. We still had our home in Canberra to move back into. Our friends have taken extraordinary care of us. Our church has continued to provide for us, and have welcomed my continued ministry among them. We’re receiving top shelf medical attention. I’m even allowed a tv in the bedroom! And there is so much more!

Let me tell you about the weekend just gone. It was a special time for our family (only we missed Matt). Fiona and Grace both entered large teams in the Cancer Council’s Relay for Life. They set up camp at the AIS athletics track and walked for 24 hours to raise money and awareness for cancer research and support. I wasn’t that keen to go – who wants to be surrounded by people with cancer? But the relay had a carnival vibe about it, with music, dancing, stalls, fancy dress, and lots of people having fun in the sunshine (& rain). Some ran lap after lap, others walked as best they could. I did a few laps at different times of the day, and must have been the slowest walker on the track each time.

FamilyThe first lap was exclusively for people who had cancer (either now or previously) and for carers. I wore a sash saying ‘survivor’ and members of my family wore sashes saying ‘carer’. It seemed strange to wear the sash, as though I should’ve had to go into remission to ‘deserve’ it. But, I have cancer, I am alive – so I guess I’m a survivor! As we walked the lap it was very moving to be clapped by hundreds of people lining the track, including many friends in Grace and Fiona’s teams. I shed a few tears that I kept well hidden behind my sunglasses! I was glad that I’d gone along.

My prayer is that people will value their lives here and now, but that they will also accept God’s wonderful invitation of life forever with him. Some people seem to think that Christian faith is ‘life-denying’. My experience is the exact opposite. Jesus came so that we might have life in all its fulness – now and forever.

Thank you again for your encouragement and support. The chemo roller coaster is a tough one, but made much easier in the knowledge that people are praying and helping us in so many ways. There is one cycle to go and we don’t know the plan after that. It could be more of the same, or part thereof. It could be something radically different. Our desire is for the treatment to completely destroy this cancer, and for us to be able to make new plans for a life beyond cancer, God willing.

Posted in Journey with cancer | Leave a comment

Who am I?

I just noticed that I have a problem! I’ve started to define myself as a cancer patient. Sometimes, with exotic pride… “I have a rare genetic mutation that is driving the cancer.” Sometimes, just the mundane… “I’m sick of being sick all the time.” Sometimes, in boring detail… “Let me tell you the latest side effects of the chemo!” Sometimes, in self pity… “Why is this happening to me?”

The truth is, this way of thinking is a lie and a trap. Always has been. I know that I’m not the sum total of my upbringing, career choices, sporting successes, travels, relationships, accumulated possessions or circumstances. My significance can’t be measured by wealth, or wisdom, or health, or the lack thereof. I believe God has made me for a purpose. Not to wallow in self-pity or be puffed up with pride, but to look outwards to others, to consider others more important than myself, and to put other’s needs before my own. God has shown me how to do that, in Jesus who had everything but incredibly sacrificed it all for you and me. It’s not easy, but please God, help me to remember that it’s not about me.

(first published in macarisms.com 13/2/12)

Posted in Journey with cancer | Tagged | Leave a comment

Looking for hope?

DaveDave is the author of the book Hope Beyond Cure. In December 2011 Dave was diagnosed with lung cancer. To be specific—stage 4 non-small cell lung cancer. The cancer was considered inoperable and incurable. Dave has responded well to three weekly chemotherapy treatment and is currently considered to be NED (no evidence of disease).

This site provides a link to the publisher’s website and online store if you are interested in purchasing the book. You will find many hope-filled articles reflecting on cancer, life and faith. You can scroll down to the bottom to follow this journey from the beginning. There are links to a number of other resources designed to inform and encourage people struggling on the journey with cancer.

Dave finds great encouragement in many different sources of hope, but ultimately in the hope that only God can offer—a hope beyond cure, beyond death itself, for all eternity.

hbc_265

Hope Beyond Cure
For those who are looking for a hope that is real
and a hope that lasts.

Posted in Journey with cancer | Leave a comment